Thursday, September 23, 2010
Today was another bad one for Gracie. Her seizure activity has continued to increase since Tuesday. I've gone from tracking how many seizures per day to how many per hour. It seems like her previous triggers no longer apply. No pattern seems to exist. It's just mayhem.
The worst part of witnessing her seizures is how helpless you feel. I've never felt so out of control. All I can do is rub her belly and tell her how much I love her. I must repeat "it's ok" and "I'm so sorry" a thousand times when she's having one. It's such a horrible and heartbreaking experience to watch.
Tomorrow we'll be starting her on Topiramate (15 mg.) which is an anticonvulsant. It works by decreasing abnormal excitement in the brain. Hopefully this with the increase in Keppra will help.
In the meantime, we'll continue to take it day by day and hope to get a handle on the seizures soon.
Posted by Brien Cook at 10:49 PM