That's pretty much how I feel sometimes. We can have a few "good" days to only be followed by a few bad days. Yesterday was one of those days. Gracie had 12 seizures yesterday, which is a drastic increase over her baseline of 2-3 seizures per day. This morning alone she's had 3. We're not really sure why, but then again that's par for the course.
I contacted Dr. Friederich this morning and he wanted us to up her Keppra to 2 ml twice a day and give her some Lorazepam to calm her down. He said if the increase in Keppra doesn't help we might have to look at switching her meds, which more then likely means giving her Phenobarbital.
So far she's been resting comfortably since her morning meds. So we'll see what the rest of the day holds for us.
Oh Brien and Holly, I have said those exact words. I'm praying for you both and little Gracie always. Meghan was on Phenobarbital along with Keppra also, and it worked wonders!! Completely took care of the seizures. Keep up the hope!! Hugs to you all!
ReplyDeletePraying for you guys daily. Hugs to little Gracie and you all.
ReplyDeletePraying for Gracie's seizures to slow down and for her comfort...and as always praying for mommy and daddy to stay strong! Love you all...Patti
ReplyDeleteHang in there guys. Prayers are with you. Hugs to Gracie from Audrey:) She needs her friend to get better so they can have a playdate one day soon. love, PJ, Mark & Audrey Decker
ReplyDeleteAs always, Gracie remains ever so close in thought and prayer. Her new picture is absolutely precious...she's so beautiful!
ReplyDeleteGale
Gracie is in my thoughts and prayers everyday.
ReplyDelete